Some have mentioned it's a BTDT situation or had similar adventures ~ this having pulmonary hypertension can and usually does change your life style but again remember it's a doable disease. Treatments are out there and some of us are on combination treatments, some on a single medication and when our doctors see what our pressures are -- they go from there to see what best suits our individual needs. We are each unique in our needs and treatments and it's so very important to let our doctors know how we are doing and what we are feeling.
A note to my PH doctor after the adventure below. I have a very good relationship with my PH doctor and nurses. They have been through a lot with me and are always there to answer my questions and give me support when needed. The Cleveland Clinic ROCKS....
"I was going to try to tough it out but I can't and Tom doesn't want to go to
Seems when you have a set back, "things" tend to get in the way and you might want to moan and groan some. Go right ahead, moan and groan, it's good for the soul *;*
Melre ~ OHPA
SMILE ~ IT'S CONTAGIOUS