A little bit about me and my phriends. Things to think about and/or how I deal with having a rare and life threatening disease.
A down home kind of page -- well, that's what I'm hoping for.
New to the world of Pulmonary Hypertension ~ I say new but I have been on Flolan (an invasive medication) for many years now (in 2010 I switched to IV Remodulin). I also take Viagra/Revatio, 02 24/7 and a water pill. I guess I'm lucky because many PHers take many more pills than that.
PH is a rare and life threatening disease with no known cure at this time; with treatment you can lead a somewhat normal life. There is hope and that's what my life has now become ~ living for and fighting for hope and a cure.
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