Saturday, March 23, 2013

I'm a YO YO .... again

Well, here I go once again. Up or down... that would be how I feel. You know when you have a chronic illness you have good days and not so good days. Therefore, I consider myself a yo yo of sorts. I'm up one day and down another. At least the up days, those good days, still out number the not so good days. I refuse to have a bad day. It's just not in my spirit.

I am so glad I finally figured out how to blog once again. Been a while. Since I had my operation I haven't been on as often as I would like. First cause was - I couldn't type (not that I really can right now) and then I spent so much time learning how to walk, how to feed myself and yes how to type once again; and the other things that go along with having a "normal" life. Who me, normal. As we say in the PH (pulmonary hypertension) community, we now live a new normal.

You ask what is pulmonary hypertension: "High blood pressure in the lungs is called pulmonary hypertension (PH) or pulmonary arterial hypertension (PAH). Once considered rapidly fatal, this rare disease is still very serious but treatable. Yet even with nine therapies available, many patients receive proper diagnosis and treatment too late. Symptoms often lead to misdiagnosis of pulmonary hypertension as sleep apnea, COPD, asthma or obesity. Many patients will see 3 or more different physicians over a 3-year period before they are properly diagnosed with PAH. The average time between PH symptom onset and diagnosis is 2.8 years Almost ¾ of patients have advanced PH (Class II or IV) by the time they are diagnosed. The diagnosis time has not changed in over 20 years." partially borrowed from the Pulmonary Hypertension Association

I have this - this life threatening disease, others also have this disease, approximatey 30,000 in the USofA and about 150,000 world-wide. Not a very common disease at all considering, and I call it the Dastardly Disease(see Novemer 2010); I wrote a poem about it. Says it like it is. While I was in the hospital (suppose to be there 5 days and ended up being almost 3 months)one of the nurses copied my poem, enlarged it and taped it to the wall. I made every doctor, nurse, techie, cleaning staff READ IT. It brought tears to some and the docs said it really does say it like it is.

I think you can tell by my writing here why I titled this YO YO!. Not only does my mind go up and down, so do my innards :D The hope was with the open heart surgery I would be cured of the Dastardly Disease - didn't happen but I am on half the medicatin I was on, my heart is getting stronger and stronger. I am able to now exercise every day (week day, I take the weekends off) and I can now walk without looking like a toddler with a "load" in their diaper. Took a while (almost 2 years) but I'm getting there.

Yet, wouldn't you know, something is still going on. I have great doctors and they listen and follow thru. i.e. last week I had a 24 hour Holter Monitor and a chest x-ray. Don't have the results of the Holter yet but the x-ray showed no signs of pneumonia. Not wheezing or anything like that, just something isn't right in the bod. So I'm upsy, downsy, like a yo, yo.

I'll try to write more often, now that I figured how to do this; well, I think I have .... AND

REMEMBER TO SMILE, IT'S CONTAGIOUS.

ME

5 comments:

Anonymous said...

It is Miuccia [url=http://www.furworld.ru/ ]шубу [/url] and Patrizio Bertelli who discover the secret of Prada and invent the first black nylon Prada handbag on the globe which opens the successful and beneficial door of world famous handbag brand. Prada Handbags is renowned for its glamorous. Every woman wants a Prada handbag which stands for the fashion and the way of life. Prada store sells cheap Prada, including Prada purses and Prada handbags. [url=http://www.furworld.ru/ ]шубы из китая [/url] is a good way for you to purchase a bag of top quality and greatest designed. With the growth and development of Prada, an increasing number of [url=http://www.furworld.ru/ ]меховая фабрика [/url] are established. Getting Prada handbags and Prada wallets in [url=http://www.furworld.ru/ ]шубы из китая [/url] could save you a huge number of money and time. [url=http://www.furworld.ru/ ]мех [/url] is another good option for you. [url=http://www.furworld.ru/ ]меховые фабрики [/url] would not let you down.

Anonymous said...

Don't touch the omelette but ocassionally swirl the pan around so that the final product doesn't turn out dry.

While other plans ask you to stop eating your favorite foods while still
adhering to the what you can eat on the paleo diet, can you eat on the diet such as the amount of sugar to an otherwise
sugar-free diet. Fill remaining, empty, empty.


Here is my blog post - paleo lunch ideas

Anonymous said...

google law firm

Anonymous said...

rayban sunglasses, [url=http://rayban.genin.jp/]レイバン メガネ[/url]
and Harley-Davidson motorcycles, ZIPPO lighters done as the assertion of American culture. rayban English called Ray-Ban, [url=http://rayban.bufsiz.jp/]サングラス レイバン[/url]
Mark out as showing off, Debar the strike out, sunglasses hunk the excel of the sun-up is essential. In the blue ribbon half of the 20th century, wearing a rayban [url=http://rayban.ashigaru.jp/]http://rayban.ashigaru.jp/[/url]
lenses are the biggest names in the construction perseverance insides, Gary - Award, Audrey Hepburn is its loyal. Nowadays, rayban this characterize in the taste of people's daily communicating with the law frequently. Wayfarer-style whey-faced whomp, red surround, sooty determine down, tortoiseshell ...... [url=http://rayban.bufsiz.jp/]レイバン メガネ[/url]
divergent rayban sunglasses frame in Hollywood stars pretence, with rig wide of the mark civilian clothes, appeared on different [url=http://rayban.ashigaru.jp/]サングラス レイバン[/url]
occasions. Sienna Miller, Olsen sisters, Kirsten Dunst rayban and so are the backbone.

Anonymous said...

dating and ex boyfriends friend reviews http://loveepicentre.com/ free dating phone services in maryland
golf dating ma [url=http://loveepicentre.com]best friend dating ex with children[/url] hentia dating sim
dating service in london ontario [url=http://loveepicentre.com/]dating exclusivity relationship[/url] cerebral palsy dating [url=http://loveepicentre.com/user/soulll802/]soulll802[/url] dating on line